This is Amelia:

Amelia is 3. There are a lot of things to know about Amelia, but one of those things is this: Amelia was born with Wolf-Hirschhorn Syndrome. Another thing you should know about Amelia is that she is loved. In her mother’s words:

“I was wrong about fixing Amelia. She never needed to be mended, repaired, refurbished. Mia is content with her life. A happy child whose perfect day involves swinging in the Pooh swing, batting her favorite bug under her toy mat, and rolling around on the living room rug to bang her legs on the dog’s head. In her eyes, her life is perfect. And after two years of having her in my life, in my eyes her life is perfect.”

And here is one more thing you should know: Amelia needs a kidney transplant. And Amelia has been denied this transplant, because she is “mentally retarded”.

There is really nothing that I can write that can convey the tragedy of this situation, so again I will let Amelia’s mother speak:

“I am going to try to and tell you what happened to us on January 1o, 2012…”